Please help me spread the word about ending the use of the R-Word!!! Someone I love is affected by this demeaning word. It hurts innocent ppl and their loved ones. I know this is not Lupus related but please be kind and accept my invitation to pledge<3
Very informational and detailed video of Lupus…
“My Faith is my Cure” tee’s are on sale now at http://mypurplerose.bigcartel.com/.
You will be helping the Purple Rose Foundation and many programs that they are running such as the Parents Against Lupus, Believe & MayaForever. Purple Rose helps in so much Lupus awareness and definitely in helping survivors!!! If you order by tonight you get free make up by Black Radiance Beauty!!!
Hope this post finds you all in good spirits and most importantly in good health! I know its been a while that I talk about myself and today really should not be the day I do either, but what the heck, lol. At least let me tell you all just some of the craziness that is my life.
So, I lost my insurance coverage for about 2 months back in November and December which did nothing good for my health. My Lupus flares only increased and my health decreased at rapid speeds! It was no fun being so sick and barely being able to get out of bed during the holidays. Basically, they passed right by and I didn’t even notice them. Spent New Years Eve in the Emergency room…no fun at all. Now it seems that I need to go see a new neurologist as soon as possible due to new scary symptoms that I have been having that seem to be seizures. The seizures that I am having are not your typical fall to the ground and convulse kind of seizures. I am awake during the episodes and feel as they are occurring and I am physically exhausted as they end. If any of you have these please feel free to comment.
I am having extreme dizzy spells…its life they are shaking my head from side to side, but my head is still. very scary.
So,,,these are some of the reasons why I have been MIA but know that I am here as soon as I feel okay and I have important info to share with you all. Much Love to You All. Xoxo
- A fibromyalgia flare (or flare-up) is a temporary increase in the number and/or intensity of symptoms. Worsening pain and fatigue are generally the first two symptoms noticed in a fibro-flare. But other symtpoms like poor sleep, increased cognitive dysfunction and digestive disturbances are often experienced as well.
Some flares only last for a day or two but others may continue for several weeks or even months. It’s those long flares that are the hardest to deal with because it feels like they will never end. When you start to feel discouraged in the midst of a long flare, it’s important to remind yourself that flares are temporary. They will eventually begin to subside.
The best way to prevent FM flares is to identify what causes them and when possible, try to avoid the circumstances that trigger them. Keep in mind that a flare may not occur for up to 48 hours after the event that triggered it.
Causes of Fibromyalgia Flares
In my experience, 10 of the most common causes for fibromyalgia flares are:
1. Weather changes
Possibly the most common cause of short-term fibro-flares can be attributed to changes in the weather. Whenever the barometric pressure changes and a new front passes through, many people with FM experience an increase in their symptoms – particularly in their pain level. Fortunately, these flares usually only last for a day or two.
Any time we push ourselves too far physically, we’re in danger of triggering a flare. On those rare days when we feel pretty good, it’s so hard not to try to catch up with all of the chores and activities we’ve been unable to do for the past month or two. But overdoing, even when you feel good, will usually come back and bite you in the form of a fibro-flare. It’s better to increase your activity level gradually so that hopefully you’ll have more good days with fewer setbacks.
Stress may be the granddaddy of fibro-flare triggers. We’re always hearing how prolonged stress negatively affects our health and can lead to heart attacks and strokes. What we don’t always realize is that stress can have a significant impact on fibromyalgia symptoms as well.
Stress can be a particularly insidious culprit when it comes to fibro-flare triggers because it often sneaks up on us. Our responsibilities gradually increase, the economy gets worse, our child gets sick – without consciously thinking about it our stress levels have gone through the roof. Then one day we find ourselves in the midst of a major flare and wonder what caused it. It’s been my experience that stress-related flares often last the longest because they can be the most difficult to identify and then find ways by which we can manage the stress.
4. Illness or injury
Just as an illness or injury often triggers the onset of fibromyalgia, another illness or injury can trigger a flare of FM symptoms. Even something as simple as the common cold can result in a fibro-flare.
5. Hormonal changes
A number of women report experiencing FM flares related to their menstrual cycles and menopause. Whether or not hormone replacement therapy is appropriate or even would be helpful in these cases is something that each individual would have to discuss with her doctor.
6. Temperature changes
Many people with FM find that they are extremely sensitive to cold or heat or both. Being exposed to those uncomfortable temperatures, even for relatively short periods of time, can sometimes trigger a flare.
7. Lack of sleep or changes in sleep routine
Getting quality, restful, restorative sleep is an ongoing challenge for people with fibromyalgia. Whenever that sleep is disrupted or there are changes to an individual’s normal sleep patterns – particularly over a period of time – a fibro-flare may not be far behind. It’s important to find a sleep routine that works for you and stick to it as closely as you can.
8. Treatment changes
While changes to your medications or other treatment protocols are intended to bring about an improvement in your symptoms, sometimes those changes can result in a flare of your symptoms. It can be tricky to determine whether the flare was actually caused by the change itself or was coincidental. It may take a period of trial and error, working with your doctor, to figure out whether the treatment change is to blame or if some other factor triggered the flare.
Traveling is seldom easy for someone with fibromyalgia and even the best trip may be followed by a fibro-flare. One reason this happens I suspect is because travel so often involves one or more other common flare triggers such as weather changes, temperature changes, stress and the disruption of sleep routines. Try to plan plenty of rest time during your trip as well as allowing a day before you leave and at least a day or two after you return to rest. While this may not completely prevent a flare, it may help minimize its severity.
10. Individual sensitivities
Often people with fibromyalgia have a number of sensitivities such as allergies or sensitivity to light, noise and/or smells. Exposure to the things they are sensitive to – like bright lights or strong perfumes – may trigger a fibro-flare.
Preventing Fibromyalgia Flares
Although it’s not possible to prevent all fibro-flares, identifying what causes most of your flares and taking steps to try to prevent those triggers can help reduce the number and intensity of flares significantly.
Journaling or keeping a log is an excellent way of identifying possible triggers because you can go back and compare what you did prior to a current flare with other previous flares. Just take a few minutes each day to jot down your activities for the day, any new medications or other therapies started, changes to your diet, weather or temperature changes, how and when you slept – anything that could help you pinpoint changes or themes that could account for your flares.
Organizing your pills and keeping track of how many pills you have left for the month will definitely help you! You can find these organizers in many stores from your local 99cent store to your CVS stores, Walgreens, Target, or … Continue reading
I cannot begin to express my gratitude to all my readers and viewers…I feel blessed that someone out there is actually reading! I do, from the bottom of my heart apologize for not keeping up. I will post an update in a bit about why I have fallen behind so much, but for now here are my stats that I want to share with all my readers bc we are in this together. Much Love:)
The WordPress.com stats helper monkeys prepared a 2013 annual report for this blog.
Here’s an excerpt:
A San Francisco cable car holds 60 people. This blog was viewed about 910 times in 2013. If it were a cable car, it would take about 15 trips to carry that many people.
I have realized that I love giving people advice and love to be supportive to all my friends and family no matter what the situation may be. I try to be as encouraging to all my Lupus Family that I love very much because I know it can get very tough, but the funny thing is that I don’t take my own advice…
I have been forced to drop my two classes from Grad school this semester and that has been extremely tough on my confidence as a student, because I am always striving to succeed, therefore now feeling as a failure, ughh! I know that I am capable of so much but my Lupus and Fibromyalgia have really kicked my ass. I have felt so sick and fatigued that I can barely get up a lot of the times and it sucks to be so unproductive. I am grateful that I am not as ill as other of my fellow Lupies and I am very considerate of that, but when you have lived life to the fullest trying to juggle it all with work, school, and a family but all of a sudden 90% of that comes to crashing haul its extremely difficult. I am not Giving Up and thats for darn sure, but I am afraid of not succeeding in the future. I am afraid that my brain fog stops taking over my brain and lets me continue to be a productive individual.
Don’t get me wrong I am a very optimistic person, but I have to tell myself “Cindy, you got this and you can do it”. Its a matter of believing it still and keep pushing!!! So, for all my readers and family out there reading this and having some similar feelings all I want to tell you is that we Have to Keep Pushing, we Can Do It!!!
1st Annual Lupus Awareness Social Mixer @ Planet Dailies in Los Angeles, CA
It is officially One day away! Will you be there to join Ethno Cares Spread Lupus Awareness?
Enjoy great music, light appetizers, and socialize with others in one of LA’s hottest venues as you learn about Lupus.