It has been a while that i have spent time writing for all my Lupus Community and others who enjoy visiting my blog! My apologies but Life happened. Many great things happened, but at the same time I’m here at … Continue reading
Just Ask The Cooperative!
Also, make lifestyle changes to reduce stress, which is believed to trigger lupus flares–making your condition worse. You may need to cut back on hours at work or get friends and family members to help ease the demands in your life. Try to be flexible. If you’re tired, rest. If you’re in pain, stop what you’re doing. Know your limits. Lupus is not an easy disease, but it can be managed, and you can continue to live a full life.
It has been very difficult lately to get stuff done. I have to completely pace myself and take things one step at a time. Definitely, day by day. No matter how much I rest I get it seems as if it is never enough. On Monday, all I can think about is getting through the week and it just seems to feel extremely long and like the days just drag when I’m at work. Last January, my doctor disabled me but I decided by August that I needed to go back to work. I went back in late November and now I feel as if I can’t go one another week. Do any of you feel this way? I wonder if I’m the only one with this issue.
I have gone to school to darn long to just give up. I feel like I would let down my kids and the rest of my family. Lupus and fibromyalgia alone are enough to make someone feel extremely and utterly unable to everyday tasks, so just imagine having 6 invisible and chronic illnesses. Don’t get me wrong that there are days I can actually get stuff done just that the next day I kinda pay for it. I went to Disneyland twice this month, so that’s great but keep in mind i did 4 rides the most and came home. I wish and pray that all my fellow spoonies are doing fantastic today, tomorrow and everyday!
Watch her videos! Love her.
Our 2014 awareness campaign video with Matt from Running for Lupus, EthnoCares and Howse Foundation!
This time around I have had the worst flare, extreme fatigue just horrible pain and get very depressed and I’m sad to admit to it but it is the truth and I want to share it with you. I know many of you guys suffer the same or maybe even worst. There are days where I can get up and I can do somethings so I do it because I have my kids to take care of so I do it to make them happy and to do things that a mother has to do. The problem with that is that the flare doesn’t completely go away and I fallback into bed so what are we to Do? As lupus fighters and we have this type of cycle over and over again what do we do?
Depression can become overwhelming at times where we have to be mentally strong to manage the pain and loneliness & everything that our body is going through and not just that but outside including our home our friends etc. There are changes in our school or work things that we are losing & are not able to do it is very difficult but we need to understand things will be okay and God will be by us and he will guide us!
Our situation will get better we need to be strong & relying on family, speaking up & asking for help is such a great thing got us. you know also I have a lot of friends on social media that are very helpful you know they give me the strength that I sometimes need because they give me encouraging words and you know I know that I’m not alone and I’m not the only one going through all this pain.
Sorry for tonight’s rant but my pain is just so unbareable I had to say something tonight, couldn’t type so I used Siri to type this up but I hope you’re all doing well tonight and have a good night love you! Xoxo
I would like to ask you my readers… What do you do when your pain just becomes unbearable and your pain meds are just not enough?
These are the toughest and longest nights in our lives, so I want to see if we can learn any tips from one another. Thank you:)