It is always a little nerve-wracking when you are about to see your new Rheumatologist. I even have a bit of anxiety since my appointment is tomorrow morning. Knowing that I have to list my symptoms, length of time, rate the pain I … Continue reading
It has been a while that i have spent time writing for all my Lupus Community and others who enjoy visiting my blog! My apologies but Life happened. Many great things happened, but at the same time I’m here at … Continue reading
I have stopped writing for various reasons but the main one is fatigue and memory issues. My seizures became more frequent this year and as much as I tried becoming a better mother to my children the more I have let them down. As my readers know I received my masters not too far back but by now I should’ve had a good career! Well, a few weeks ago in November I had started an amazing job with great pay and great people! I only lasted 3 weeks due to illnesses circumstances and my seizures and depression. I thought by quitting I was doing everyone a favor but when I recovered soon after I tried explaining to my employer and they still let me go! I did not ever want to quit now I can’t even afford a Christmas tree for my kids and my husband has been working so hard but our car keeps breaking down isn’t that a shame! Sorry for the depressing post but this is why we need a CURE for all incurable illnesses such as Lupus. We deserve a life a good life and so do my kids. I want to apologize to them for not giving them the life they deserve. I am sorry.
#LupusAwareness💜🦋 In my last semester @msmu_la during my undergrad time at Chalon (early 2010) I was under a lot of stress and began having some gastrointestinal issues and many migraines, I remember one of my professors telling me Cindy relax and remember that stress kills! I laughed it off (I was always a perfectionist in my work)…later that year I received terrible news that a family member in Las Vegas was about to pass we rushed there and during that weekend at the hospital for him I had a mini stroke (numbness on left side of body, couldn’t feel my face, tingling in my face and dropping for sometime) by the Fall my episodes increased had a neurologist and by February 2011 I was diagnosed with Lupus and Migraines. Not to say that I didn’t have these issues before because I remember having a terrible time certain mornings and not being able to get up to go to work on time! This is a glimpse of how I was diagnosed and ever since it’s been a rollercoaster but thank you to amazing foundations such as @simi_autoimmune_warrior @wewinfoundation for helping people with not just #lupus but with other #autoimmunediseases thank you to @blackradiancebeauty and @kimberlirose for donating to the fundraiser for this weekend beautiful make up such as the one I am wearing💜💄💋 It sometimes takes a village to bring awareness and this weekend was a fantastic and cheerful one and I was proud to be there and help my friend Marlo with such a great cause🙏💜✋ #lupusstrong #lupuswarrior #weneedacure
My rheumatologist appointment went really well and I was pleasantly surprised to know that he cares to know about my past rheumatologists and my medical history. I say this because obviously the one i had prior never did! I did receive my blood work back, but I do not see him until the first week of June. There are some results that of course I googled, lol (don’t we all do this?) that seem to be a bit concerning…I have been in a bad flare along with a trigeminal neuralgia flare which i will explain in my next post. So, if any of you have nay experience with these abnormal or high blood levels/results I would love your feedback:
WBC Abnormal 6-10
TSH High 7.170
Complement C3, Serum High 170
Vitamin D, 25-Hydroxy 20.0 Low
Anti-DNA (DS) Ab Qn High 14
C-Reactive Protein, Quant high 5.1
Help me out with your feedback!!!!
Lupus Patients Should Have Their Heart Valves Checked, Researchers Conclude https://lupusnewstoday.com/2017/05/08/researchers-say-lupus-patients-should-have-their-heart-valves-checked/ via @lupusnewstoday
Lupus is a chronic autoimmune disease in which the body’s immune system becomes hyperactive and attacks normal, healthy tissue. This results in symptoms such as inflammation, swelling, and damage to joints, skin, kidneys, blood, the heart, and lungs.
Let’s spread awareness to bring the needed research for a cure! How will you spread awareness this month?
Went in to the hospital Friday night and came out Saturday morning with this bad baby😳🙄 I went to Urgent Care due to seizures bc of my #lupusflare 😷🤦🏻♀️ i have been sleeping a lot, trying to get my energy … Continue reading