It is always a little nerve-wracking when you are about to see your new Rheumatologist. I even have a bit of anxiety since my appointment is tomorrow morning. Knowing that I have to list my symptoms, length of time, rate the pain I … Continue reading
Went in to the hospital Friday night and came out Saturday morning with this bad baby😳🙄 I went to Urgent Care due to seizures bc of my #lupusflare 😷🤦🏻♀️ i have been sleeping a lot, trying to get my energy … Continue reading
For a few years now I thought I was having some sort of tremors or shaking of my head and then realized they were awake seizures…not too serious I thought! Have you ever had that? I just thought maybe I … Continue reading
Just Ask The Cooperative!
Also, make lifestyle changes to reduce stress, which is believed to trigger lupus flares–making your condition worse. You may need to cut back on hours at work or get friends and family members to help ease the demands in your life. Try to be flexible. If you’re tired, rest. If you’re in pain, stop what you’re doing. Know your limits. Lupus is not an easy disease, but it can be managed, and you can continue to live a full life.
It has been very difficult lately to get stuff done. I have to completely pace myself and take things one step at a time. Definitely, day by day. No matter how much I rest I get it seems as if it is never enough. On Monday, all I can think about is getting through the week and it just seems to feel extremely long and like the days just drag when I’m at work. Last January, my doctor disabled me but I decided by August that I needed to go back to work. I went back in late November and now I feel as if I can’t go one another week. Do any of you feel this way? I wonder if I’m the only one with this issue.
I have gone to school to darn long to just give up. I feel like I would let down my kids and the rest of my family. Lupus and fibromyalgia alone are enough to make someone feel extremely and utterly unable to everyday tasks, so just imagine having 6 invisible and chronic illnesses. Don’t get me wrong that there are days I can actually get stuff done just that the next day I kinda pay for it. I went to Disneyland twice this month, so that’s great but keep in mind i did 4 rides the most and came home. I wish and pray that all my fellow spoonies are doing fantastic today, tomorrow and everyday!
Watch her videos! Love her.
It has been a while that i have spent time writing for all my Lupus Community and others who enjoy visiting my blog! My apologies but Life happened. Many great things happened, but at the same time I’m here at … Continue reading