Spreading Awareness on Rare Disease Day…

WHAT

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.The campaign targets primarily the general public 
Rare Disease Dayand also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

WHO

Rare Disease Day events are down to hundreds of patient organisations all over the world who work on a local and national level to raise awareness for the rare disease community in their countries.
Since Rare Disease Day was first launched by EURORDIS and its Council of National Alliances in 2008, thousands of events have taken place throughout the world reaching hundreds of thousands of people and resulting in a great deal of media coverage. We especially thank our official Rare Disease Day partners, the National Alliances. These are umbrella organisations who group together several rare disease organisations in a given country or region. Click on a logo of one of the National Alliances to go to their website.

WHERE

The campaign started as a European event and has progressively become a world phenomenon, with the USA joining in 2009 and participation in over 80 countries throughout the world in 2016. Hundreds of cities continue to take part in Rare Disease Day and we hope even more will join in 2017.

http://www.rarediseaseday.org/article/what-is-rare-disease-day
INFO you can print and share today…

http://img.rarediseaseday.org.s3.amazonaws.com/InfoPack2017.pdf

The Lupus Project

The Lupus Project’s featured vendor that we are SUPER excited about for this weekend The Springs LA (@thespringsla) will be here offering yoga, meditation, and even A CHAIR MASSAGE 😫😫😫for The Lupus Project’s guests! SINCE 2014, THE SPRINGS HAS BEEN A HUB FOR WELLNESS IN GREATER LOS ANGELES. THEIR UNIQUE COMBINATION OF SERVICES CREATES A SPACE WHERE EVERYONE IS WELCOME AND HEALTH IS ACCESSIBLE TO ALL. THEIR SPACE IS FOR THE COMMUNITY AND THEY WELCOME YOU TO EXPERIENCE THE PERFECT LIFESTYLE OF BALANCE.

#yoga #meditation #massage #thespringsla #health #balance #thelupusproject #tlp #thelupusproject2017 #tlp2017

The Lupus Project 

Via Howse Foundation…

Our feautured Vendor THIS SATURDAY at The Lupus Project! Theramu, tried and true relief uses Emu Oil to deliver the CBD deep into the body where it binds to CB2 receptors found along the nerves and within the immune system. Together, they provide an anti-inflammatory response along with pain suppression, while promoting accelerated healing of damaged tissue. Make sure you stop by their booth and check them out. #thelupusproject #lupus #thelupusproject2017 #tlp2017 

#cbd #emuoil #relief

The Lupus Project

The Lupus Project is THIS SATURDAY! The goal of The Lupus Project 2017 is to bring together individuals living with #lupus and their families for a convenient, fun, informative, and social affair where businesses and Lupus organizations can share about their products/resources. The individuals participating will be Lupus Organizations, and special businesses that cater to the lupus and health conscious consumer as well as their families. This year, we plan to have a fun filled, more interactive event and that we know you will love 💜